醫(yī)患雜談:求助－救救我老公吧,他得了疑難雜癥

<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><FONT color=#000000><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">我老公</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">43</FONT></SPAN><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">歲，得了一種叫</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">poems</FONT></SPAN><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">綜合癥的非常罕見的病。最早從</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">06</FONT></SPAN><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">年</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">5</FONT></SPAN><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">月起，右腳足心痛。后逐漸向上發(fā)展，現(xiàn)在是雙下肢疼痛（這種痛是一種難以名狀的感覺：包括針刺樣的刺痛、麻木、脹痛等感覺揉和在一起)異常，雙腿無力，皮膚變薄變黑變精選，皮膚變薄處似皮下有水，抓破后流水（無色透明)久不結(jié)痂。</SPAN></FONT></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN lang=EN-US><?xml:namespace prefix = o ns = "urn:schemas-microsoft-comfficeffice" /><o:p><FONT face="Times New Roman" color=#000000 size=3>&nbsp;</FONT></o:p></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><FONT color=#000000><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">下面對</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">poems</FONT></SPAN><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">綜合癥做一簡單介紹：</SPAN></FONT></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">POMES</SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">意思是：<SPAN lang=EN-US><o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">P: </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">多發(fā)性神經(jīng)病<SPAN lang=EN-US>(Polygneuropathy)<o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">O: </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">臟器腫大<SPAN lang=EN-US>(Organomegaly)<o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">E: </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">內(nèi)分泌病<SPAN lang=EN-US>(Endocrinopathy)<o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">M: </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">蛋白<SPAN lang=EN-US>(M-protein)<o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">S: </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">皮膚改變<SPAN lang=EN-US>(Skin-changes)</SPAN>。<SPAN lang=EN-US><o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體"><FONT size=3>取其英文之首字母<SPAN lang=EN-US>,</SPAN>稱為<SPAN lang=EN-US>POEMS</SPAN>綜合征。<SPAN lang=EN-US><o:p></o:p></SPAN></FONT></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體"><o:p><FONT size=3>&nbsp;</FONT></o:p></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體"><FONT size=3>目前我老公占了其中的三樣：<SPAN lang=EN-US><o:p></o:p></SPAN></FONT></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">P</SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">多發(fā)性神經(jīng)病<SPAN lang=EN-US>: </SPAN><SPAN style="BACKGROUND: yellow; mso-highlight: yellow">呈進(jìn)行性、對稱性感覺、運(yùn)動損害，從四肢遠(yuǎn)端向近端發(fā)展，覺麻木、疼痛、乏力、軟弱、肌肉逐漸萎縮</SPAN>。雙小腿破處久不結(jié)痂。<SPAN lang=EN-US><o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">M</SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">蛋白<SPAN style="BACKGROUND: yellow; mso-highlight: yellow">和骨髓異常</SPAN><SPAN lang=EN-US>: </SPAN><SPAN style="BACKGROUND: yellow; mso-highlight: yellow">血中出現(xiàn)<SPAN lang=EN-US>M</SPAN>蛋白</SPAN>，<SPAN style="BACKGROUND: yellow; mso-highlight: yellow">為<SPAN lang=EN-US>IgG</SPAN>型</SPAN><SPAN lang=EN-US>, </SPAN>目前<SPAN lang=EN-US>IgG</SPAN>為<SPAN lang=EN-US>2450</SPAN>，正常指標(biāo)是<SPAN lang=EN-US>1600</SPAN>以下。<SPAN lang=EN-US><o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體"><FONT size=3>骨髓象顯示：<SPAN style="BACKGROUND: yellow; mso-highlight: yellow">漿細(xì)胞增生</SPAN>，目前為<SPAN lang=EN-US>6.5</SPAN>％，正常為<SPAN lang=EN-US>5</SPAN>％以下<SPAN lang=EN-US><o:p></o:p></SPAN></FONT></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">S </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋體; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋體">皮膚改變<SPAN lang=EN-US>: </SPAN><SPAN style="BACKGROUND: yellow; mso-highlight: yellow">常見皮膚色素沉著</SPAN>，<SPAN style="BACKGROUND: yellow; mso-highlight: yellow">皮膚粗糙、變硬、指甲變白</SPAN><SPAN lang=EN-US><o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman""><FONT color=#000000 size=3>另外，還有極輕微的水腫。有時(shí)手或腳稍微有些腫，但不厲害，有時(shí)根本不明顯。</FONT></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN lang=EN-US><o:p><FONT face="Times New Roman" color=#000000 size=3>&nbsp;</FONT></o:p></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><FONT color=#000000><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">目前我老公主要是雙腿疼得厲害，周圍神經(jīng)炎嚴(yán)重。刺痛、麻木、脹痛等感覺揉和在一起，</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">24</FONT></SPAN><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">小時(shí)不間斷。他說是皮膚疼，不是骨頭疼。腿和腳不敢碰東西，甚至腿和褲子、被子接觸時(shí)都覺得疼。每天生活在痛苦的深淵，疼得靜坐不能。勉強(qiáng)能走路，但是感覺雙腿異常沉重，就象是穿著鋼絲做成的襪子。每天靠吃強(qiáng)力的止痛藥才稍感緩解。</SPAN></FONT></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN lang=EN-US><o:p><FONT face="Times New Roman" color=#000000 size=3>&nbsp;</FONT></o:p></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman""><FONT color=#000000 size=3>看著他痛苦的樣子，我真是心如刀割。近一年來，我們輾轉(zhuǎn)各大醫(yī)院求醫(yī)，但是癥狀沒有得到絲毫緩解。醫(yī)生都沒有見過這樣的病，也束手無策。我覺得當(dāng)務(wù)之急是緩解他的癥狀，不能讓他這么痛下去�。�</FONT></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman""><FONT color=#000000 size=3></FONT></SPAN>&nbsp;</P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="FONT-FAMILY: 宋體; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman""><FONT color=#000000 size=3>請問各位網(wǎng)友，哪位醫(yī)生能治這種病？或哪位病家得過類似的病，治療效果不錯(cuò)的請介紹一下！謝謝！</FONT></SPAN></P>
－－－－－－－－－－－大小便如何
－－－－－－－－－－－試試灸法
－－－－－－－－－－－<P>大小便正常.</P>
<P>&nbsp;</P>
<P>"試試灸法",能否明示?</P>
<P>&nbsp;</P>
<P>萬分感謝!</P>
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－－－－－－－－－－－看過中醫(yī)么？
－－－－－－－－－－－面色是什么顏色,什么性格?
－－－－－－－－－－－此病中醫(yī)名叫"腳氣病"，又名緩風(fēng)，腳弱，軟腳病。濕腳氣方用雞鳴散加減�；颊邞�(yīng)有嗜酒史。
－－－－－－－－－－－<P></P>
<P>&nbsp;</P>
<P>有點(diǎn)譜尺,很似.</P>
－－－－－－－－－－－POEMS綜合癥此病因體虛汗出，津液耗傷，筋脈失于濡養(yǎng)所致，中醫(yī)治療宜和營解肌、舒緩項(xiàng)強(qiáng)、通經(jīng),
是個(gè)難纏的病。胡椒粉，酒，羊肉等油膩辛辣食物是應(yīng)該禁食的。